Lily-Mai and her family really need your help to raise £50,000
Lily was born full term and was perfect. When she was just 6 days old she stopped feeding and became sick, by day 9 of life her heart and organs began to fail and she was rushed to her local hospital where she was put on a life support machine. A series of tests showed that her heart was the full size of her chest and was struggling to cope. Following this Lily was transported to
The family was told that Lily would require more treatment when she reached 10 weeks old, when she was re-admitted after 10 weeks Lily sadly suffered a severe stroke and a range of epileptic seizures resulting in a major bleed into the brain and hydrocephalus. Lily had an External Ventricular Drain which drains CSF (Cerebrospinal Fluid) and blood from the brain. The drain became blocked and after many attempts from the intensive care team at
Lily was extubated in a children’s hospice and miraculously, against medical expectations, Lily woke up the following morning. Coming forward to the current time Lily has been diagnosed with:
Vein of Galen Malformation
Evolving Cerebral Palsy
Lily has recently had surgery for her feeding issues and the family has been advised that she needs another angiogram and embolisation however after what happened last time the family is weary of taking the risk.
The family has done some research and a highly recommended doctor in
Any donations received would be greatly appreciated as this would get Lily one step closer to the lifesaving treatment she needs.
To donate please follow this link: http://www.gofundme.com/g0k4g